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Children with cerebral palsy and the women mothers' informational path

strategies and actions in defense of citizenship

  • The aim of this study was to understand and place in perspective the meaning and contributions of information to the relationships with and the care and handling of children diagnosed with cerebral palsy, focusing on the mothers’ experiences. Research combined quantitative and qualitative methods, in which semi-structured interviews and participative observation were used to collect the data. Information became a fundamental tool in the process of increasing awareness concerning their children’s health; in learning and overcoming difficulties. The information was extremely valuable as it contributed, especially, to the care given to the children and also to the acquisition and adoption of mechanisms that promote their social integration. It was also observed that the visualization of the interaction network weaved by these women-mothers – in order to protect the citizenship – besides presenting the central position occupied by their children, also accentuates the informational component subjacent to manifestations of solidarity in a network.

     

    Instituto Brasileiro de Informação em Ciência e Tecnologia (Ibict)

    Brasília, DF, Brasil
    Setor de Autarquias Sul (SAUS), Quadra 5, Lote 6, Bloco H
    70070-912
    www.ibict.br
    Rio de Janeiro, RJ, Brasil
    Programa de Pós-graduação em Ciência da Informação
    Rua Lauro Muller, 455 - 4º Andar - Botafogo
    22290-160
    www.ppgci.ufrj.br

    Contato

    Christine Alvarez

    • +55-21-3873-9454
    • liinc@ibict.br

    Liinc em Revista ISSN 1808-3536

    Liinc em Revista é licenciada sob CC BY 4.0

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    Platform and workflow by OJS/PKP

    Desenvolvido por Commscientia