Consentimento informado no contexto da Ciência Aberta
convergências, divergências e pontos de integração
DOI:
https://doi.org/10.18225/ci.inf.v54i2.7179Keywords:
consentimento informado, ciencia aberta, modelo conceitualAbstract
A ciência aberta promove a disponibilização de dados e metodologias, exigindo um equilíbrio com a proteção dos dados pessoais. Este artigo compara os princípios da Ciência Aberta com modelos de consentimento informado, identificando convergências, divergências e oportunidades de integração. A pesquisa bibliográfica e documental explora a transparência, acessibilidade e colaboração da Ciência Aberta versus a compreensão e autonomia do consentimento informado. A análise destaca uma ênfase compartilhada na transparência e autonomia; divergências nos contextos e prioridades; e oportunidades de integração para superar desafios éticos e regulatórios na implementação do consentimento informado no contexto da Ciência Aberta.
Downloads
References
AHMED, J. et al. Towards Blockchain-Based GDPR-Compliant Online Social Networks: Challenges, Opportunities and Way Forward. Advances in Intelligent Systems and Computing. Anais...Springer, 2020a.
AHMED, J. et al. GDPR Compliant Consent Driven Data Protection in Online Social Networks: A Blockchain-Based Approach. 2020 3rd International Conference on Information and Computer Technologies (ICICT). Anais...IEEE, mar. 2020b.
BONNICI WEST, C.; GRIMA, S. A Review of the Consent Management Literature. Information, v. 15, n. 2, p. 79, 2024.
BOSSERT, S.; STRECH, D. An integrated conceptual framework for evaluating and improving ‘understanding’in informed consent. Trials, v. 18, p. 1–8, 2017.
CHEUNG, A. S. Y. Moving beyond consent for citizen science in big data health and medical research. Nw. J. Tech. & Intell. Prop., v. 16, p. 15, 2018.
FREITAS IRIZAGA, K. R. DE et al. Questões éticas na comunicação científica. Prisma. com, n. 36, p. 148–164, 2018.
FADEN, R. R.; BEAUCHAMP, T. L. A history and theory of informed consent. [s.l.] Oxford University Press, 1986.
FECHER, B.; FRIESIKE, S. Open science: one term, five schools of thought. [s.l.] Springer International Publishing, 2014.
FRIEDMAN, B.; FELTEN, E.; MILLETT, L. I. Informed consent online: A conceptual model and design principles. University of Washington Computer Science & Engineering Technical Report 00–12–2, v. 8, 2000.
MAYNE, F.; HOWITT, C.; RENNIE, L. Meaningful informed consent with young children: Looking forward through an interactive narrative approach. Early Child Development and Care, v. 186, n. 5, p. 673–687, 2016.
SCHÖPFEL, J. Open access and document supply. Interlending & Document Supply, v. 42, n. 4, p. 187–195, 1 jan. 2014.
TMAVA, A. M. Faculty perceptions of open access repositories: a qualitative analysis. New Review of Academic Librarianship, v. 29, n. 2, p. 123–151, 2023.
VICENTE-SAEZ, R.; MARTINEZ-FUENTES, C. Open Science now: A systematic literature review for an integrated definition. Journal of business research, v. 88, p. 428–436, 2018.
WHYTE, A.; PRYOR, G. Open science in practice: Researcher perspectives and participation. International Journal of Digital Curation, v. 6, n. 1, p. 199–213, 2011.
Downloads
Published
Issue
Section
License
Copyright (c) 2025 Jonas Ferrigolo Melo Melo, Moisés Rockembach

This work is licensed under a Creative Commons Attribution-ShareAlike 4.0 International License.
- This publication reserves the right to modify the original, regarding norms, spelling and grammar, in order to maintain the standards of the language, still respecting author writing style;
- The final proofs will not be sent to the authors;
- Published works become Ciência da Informação's property, their second partial or full print being subject to expressed authorization by IBICT's Director;
- The original source of publicaton must be provided at all times;
- The authors are solely responsible fo the views expressed within the article;
- Each author will receive two hard copies of the issue, if made availalbe in print.